About TG6

I spent 13 years searching for answers. Thirteen years of unexplained neurological symptoms, misdiagnoses, and unanswered questions - until I was finally diagnosed with Gluten Ataxia, a condition that many people (including healthcare professionals) still haven’t heard of. By the time I got the right diagnosis, the damage was done, and I now live with long-term neurological impairment.

But instead of letting that be the end of the story, I decided it would be the beginning of one.

I co-founded TG6 with Jane Egan to raise awareness of Gluten Ataxia, promote the importance of TG6 testing, and ensure that others don’t go through the same long, isolating, and avoidable diagnostic journey that I did. Together, we combine professional skills with lived experience to educate the public, support individuals seeking answers, and equip GPs and neurologists with the knowledge they need to recognise symptoms early.

My work is grounded in purpose:
• Empowering people with symptoms to advocate for themselves
• Helping clinicians understand a condition that is far more common than realised
• Sharing clear, accessible information about TG6, testing, and neurological impact
• Building a community where people feel informed, believed, and supported

Although I’ve had to adapt how I work due to my own neurological limitations, I remain deeply committed to driving change in an area where it is urgently needed.

Above all, I believe that no one should lose years of their life to symptoms that could have been recognised sooner. No one should be told “it’s nothing” when it’s something. And no one should face Gluten Ataxia alone.

If you’re interested in raising awareness, collaborating, or learning more about TG6 and our mission, I’d love to connect.